Friday, January 14, 2011

Bringing everyone up to speed...

I am a Daily Chronic Pain Sufferer and have been for well over 10 years.  It all began with daily headaches that just would not go away.  I went to every specialist that could possibly have anything to do with what was causing these headaches.  I have been to Oral Surgeons, Ear, Nose & Throat Dr's, Allergists, Rheumatologist, several Neurologist, Psychologist,  Physical Therapy and I have had several sleep studies.  I have been in the hospital twice for in-patient stays trying to break the headache cycles once for 3 days and once for 3 weeks.  I left with a headache each time.  I have had at least 20 MRI's and CAT-SCAN.  I have had Radio Frequency Nerve Blocks and Occipital Nerve Blocks.  I have had trigger point injections, I have even had Botox at the insurance companies expense across my forehead and scalp. lol

I finally found a Dr', who after nearly 10 years looked at all my records and said th me "Michelle I can tell you a couple of things.  You have Fibromyalgia and you have had it for years".  I sat there and cried tears of JOY, I finally had a name and I was not going t die.  He also informed me I had Chronic Fatigue and pooled it all under something called Central Nervous System Syndrome. It is getting worse, I can tell as I get older.  I lost my job for reasons not associated with this, but I see now that I may never be able to do my job again.  I was a Pharmacy Technician and it required a lot standing an bending the waist and neck  My Pain Management Dr. wants me now to go see an Infectious Disease Dr. to see if I might have been exposed to something  all those  years ago .  Probably something along the lines of Lyme's Disease..   We will see , I have an appointment with her on Jan 28th..

From here on out, all of the Chronic Pain issues will be on the Chronic Pain page of this blog.  I just wanted everyone to be aware of what the page was going to be about.   Well that long story made very short and I will  make sure more story will come out as time and question come in...  Please add you short story in the comments sections under each post.

Here's To A Happy Healthy New Year...

Michelle

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